Veteran engagement is the meaningful collaboration between Veterans and researchers across all stages of the research process, including design, conduct, and dissemination. Engaging Veterans and their caregivers as subject-matter experts with valuable experiences, beliefs, and expertise has emerged as a powerful way to guide research decisions, improve outcomes, and build trust in VA. Today, the Health Systems Research (HSR) broad portfolio of VA’s Office of Research and Development (ORD) requires study proposals to include plans for engaging Veterans and/or caregivers throughout.
This concept of collaborative research aligns with the goals of a learning health system, which turns the experience of caring for patients into insights and improves and accelerates the uptake of discoveries and innovations in clinical practice. VA researchers can engage with Veterans and their caregivers in many ways, in varying degrees of both purpose and intensity. More than 37 Veteran engagement groups—and counting—work with researchers nationwide, most through HSR Centers of Innovation (COINs) or Consortia of Research (COREs).
The concept of patient-centered or community-based participatory research (CBPR) goes back decades, and active consultation among Veterans, caregivers, and researchers is not new. A growing number of Veteran and HSR collaborators have been working together on studies and projects in recent years. The Patient Protection and Affordable Care Act of 2010 supported this expansion by establishing the non-profit Patient-Centered Outcomes Research Institute (PCORI), which funds patient-guided research nationwide.
The first Veteran engagement groups to be formally established within VA’s research program were aligned with the Seattle-Denver Center of Innovation for Veteran-Centered and Value-Driven Care and the Portland VA’s Center to Improve Veteran Involvement in Care (CIVIC). Both were formed in 2013.
In 2015, HSR established a national Veteran Engagement Workgroup (VEW), comprised of investigators, Veteran engagement group (VEG) liaisons, Veterans, and caregivers. The Workgroup has expanded efforts to include the engagement of Veterans and their caregivers in the research process, developed approaches and goals for promoting Veteran engagement in research, and outlined a conceptual model for Veteran engagement. The VEW meets virtually every 2 months. Contact Susan Zickmund [Susan.Zickmund@va.gov] if you would like to join the national Veteran Engagement Workgroup.
In 2018, a team of researchers from seven VA centers developed the Strengthening Excellence in Research through Veteran Engagement (SERVE) Toolkit, a resource to support VA research centers and investigators in their efforts to include Veterans and other stakeholders in the development, implementation, and dissemination of studies. To expand this focus beyond urban academic centers, VA’s Office of Rural Health funded the Growing Rural Outreach through Veteran Engagement (GROVE) Center in 2020. GROVE Hub is a regularly updated platform where rural Veterans and caregivers can learn about opportunities and connect with project leaders—and where researchers can learn about opportunities to collaborate with rural Veterans and caregivers.
View Veteran Engagement Groups