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Family caregiving in the community up to 8-years after onset of dementia.

Jutkowitz E, Gaugler JE, Trivedi AN, Mitchell LL, Gozalo P. Family caregiving in the community up to 8-years after onset of dementia. BMC geriatrics. 2020 Jun 19; 20(1):216.

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Abstract:

BACKGROUND: Persons with Alzheimer''s disease and related dementias (ADRD) receive care from family/friends, but how care changes from the onset of dementia remains less understood. METHODS: We used the Health and Retirement Study (2002-2012) to identify community-dwelling individuals predicted to have incident ADRD. We investigated the amount of caregiving received for activities of daily living in the 8-years after disease onset. RESULTS: At incidence (n? = 1158), persons with ADRD received 151?h (SD? = 231) of caregiving a month, 25 (SD? = 26) caregiving days a month and had 1.3 (SD? = 1.4) caregivers a month. By 8-years post incidence, 187 (16%) individuals transitioned to a nursing home and 662 (57%) died in the community. Community-dwelling persons with ADRD at 8-years post incidence (n? = 30) received 283?h (SD? = 257) of caregiving, 38 (SD? = 24) caregiving days, and had 2.2 (SD? = 1.3) caregivers. CONCLUSIONS: Community-dwelling persons with ADRD receive a substantial amount of caregiving over the first 8-years after disease onset.




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