Research Topics
Caregivers and Family Support
A caregiver—sometimes called an informal caregiver—is an unpaid individual (for example, a spouse, partner, family member, friend, or neighbor) involved in assisting others with activities of daily living and/or medical tasks. Formal caregivers are paid care providers providing care in one's home or in a care setting (day care, residential facility, long-term care facility). There are almost 5.5 million caregivers caring for Veterans, and 96% of those caregivers are women. 70% provide care to a spouse or partner, and provide care for an average of 10 years. VA research into caregiving touches on everything from delivery of services to support for caregivers to the impact of policy decisions.
Each "widget" below is populated by a dynamic search of the HSR&D website and its underlying databases. Search results are generated based on the search term "Caregiver". Results are updated regularly, as new data are available.
VIEW: Citations | Publication Briefs | Studies | HSR&D Briefs, Reports, Newsletters | Topic Spotlight | Cyberseminars | Videos | Podcasts | Other Resources
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Citations
(5 of more than 628 CAREGIVER focused publications)
- Mosher CE, Secinti E, Wu W, Kashy DA, Kroenke K, Bricker JB, Helft PR, Turk AA, Loehrer PJ, Sehdev A, Al-Hader AA, Champion VL, Johns SA. Acceptance and commitment therapy for patient fatigue interference and caregiver burden in advanced gastrointestinal cancer: Results of a pilot randomized trial. Palliative Medicine. 2022 Jul 1; 36(7):1104-1117.
- McPeake J, Henderson P, MacTavish P, Devine H, Daniel M, Lucie P, Bollan L, Hogg L, MacMahon M, Mulhern S, Murray P, O'Neill L, Strachan L, Iwashyna TJ, Shaw M, Quasim T. A multicentre evaluation exploring the impact of an integrated health and social care intervention for the caregivers of ICU survivors. Critical Care (London, England). 2022 May 24; 26(1):152.
- Kroenke K, Stump TE, Monahan PO. Agreement between older adult patient and caregiver proxy symptom reports. Journal of patient-reported outcomes. 2022 May 14; 6(1):50.
- Semere W, Makaroun LK, Beach S, Schillinger D, Rosland AM. Family caregivers navigating the health care system: Evolving roles during the COVID-19 pandemic. Families, systems & health : the journal of collaborative family healthcare. 2022 Jun 1; 40(2):268-273.
- Van Houtven CH, Ma JE, Grubber J, Shepherd-Banigan M, Lewis K, Christensen L, Richardson C, Kabat M, Decosimo K, Miller KEM, Coffman CJ, Malo T, Allen KD, Hastings SN. Systematic identification of family caregivers in health systems: Proposed solutions from a caregiver-focused research study. Journal of the American Geriatrics Society. 2022 Aug 1; 70(8):2435-2439.
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Publication Briefs
(5 of more than 23 CAREGIVER focused publication briefs)
- VA-GRACE Program Effectively Supports Aging Veterans and Caregivers But Does Not Reduce Readmissions
The Geriatric Resources for Assessment and Care of Elders (GRACE) program is a collaborative, multidisciplinary care model that provides home-based geriatric care management. This study evaluated VA-GRACE from its implementation (2010) to 2020 in terms of its effect on mortality and readmissions – and examined patient, caregiver, primary care provider, and VA-GRACE staff satisfaction. Findings sho...
Date: August 29, 2022
- Examining the Investment in Caring for High-Needs Patients
Since 2013, VA has invested more than $22 million in fostering and testing interventions within patient-centered medical homes at five demonstration sites to improve care for Veterans at highest risk for hospitalizations or death. In this commentary, VA authors involved in this project, known as the VA PACT Intensive Management program, reflect on lessons learned about improving care for this popu...
Date: September 10, 2021
- Veteran-Directed Care Adds to Options for Medically Complex Veterans Living in the Community – Without Raising Costs
One way in which VA facilitates independence and supports caregivers is through the Veteran-Directed Care (VDC) program, part of VA’s Office of Geriatrics and Extended Care Services. VDC enables enrollees to hire family members, friends, or neighbors as paid caregivers and also provides caregiver support, including caregiver training and burden monitoring. This study evaluated the incidence of VA ...
Date: June 1, 2019
- VA Experience with Implementing Intensive Primary Care Programs for Veterans at Highest Risk
This case study describes VA’s experience with implementing intensive primary care programs, as well as the program elements that appear to be necessary to meet the complex care needs of these high-risk Veterans. Findings showed that the PACT Intensive Management program (PIM) has been successfully implemented for more than three years at five demonstration sites in the VA healthcare system. The P...
Date: October 25, 2017
- Impact of Comprehensive Caregiver Support Program on VA Healthcare Utilization and Cost
The Program of Comprehensive Assistance for Family Caregivers (PCAFC) supports caregivers of Veterans from the post-9/11 era who need assistance with activities of daily living (ADLs) or supervision or protection because of the residual effect of injuries sustained during their service. A monthly stipend is provided to caregivers based on Veterans’ care needs. In this study, investigators examined...
Date: April 1, 2017
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Studies
( 5 of more than 61 CAREGIVER focused projects
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| Project No. |
Title |
PI |
Funding Start |
| CDA 21-143
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Hospital GamePlan4Care: A Web-Based Delivery System for Dementia Caregiver Support |
Horstman, Molly |
2021-10-01 |
| CDA 20-104
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Improving Mental Health for Veterans with Dementia: Provider Training in Caregiver Engagement |
Wyman, Mary |
2021-07-01 |
| PPO 20-342
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The Impact of the COVID-19 Pandemic on Veteran Caregivers: A Mixed Methods Study to inform the VA Caregiver Support System |
Penney, Lauren |
2021-03-01 |
| C19 20-398
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COVID-19 Impact on Biopsychosocial Factors of Loneliness in Rural Older Veterans and Caregivers |
Padala, Prasad |
2020-08-01 |
| IIR 18-290
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Caregiver SOS: An Intervention for Employed Caregivers |
Mavandadi, Shahrzad |
2020-04-01 |
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Topic Spotlight
Read more on this topic and related topics
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Cyberseminars
The most recent "Caregiver" seminars are displayed.
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| Date |
Title |
Presenter(s) |
| 10/13/2022 |
Photovoice: Principles, Practicality, and Benefit to Participants
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True, Gala
Ono, Sarah
Haverhals, Leah
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| 12/9/2021 |
Using Multiple Qualitative Methods to Study Changes in Care Delivery, In-Home Vaccination, & Social Isolation of Home-Based Veterans and Caregivers During the COVID-19 Pandemic
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Haverhals, Leah
Wyte-Lake, Tamar
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| 10/21/2020 |
Informal Caregiver Support Policies & Use of VA Health and Vocational Rehabilitation Services
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Shepherd-Banigan, Megan
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| 12/5/2019 |
Adaptation and Implementation of a Family Caregiver Skills Training Program: From single site RCT to multisite pragmatic intervention
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Van Houtven, Courtney
Shepherd-Banigan, Megan
Kaufman, Brystana
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| 9/24/2018 |
Balance Dysfunction after mild TBI: Findings from the Chronic Effects of NeuroTrauma Consortium Longitudinal Study
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Cifu, David
Walker, William
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