Few instruments are available to measure cancer care coordination from the patient perspective. Furthermore, prior instruments do not include items that address significant domains, including the facilitation of transfers and health information technology-enabled coordination. Finally, no instruments have been developed specific to cancer patients or health care providers in the Veterans Health Administration.
The objective of the current proposal is to develop a measure with which to systematically measure cancer care coordination from the patient perspective: the Cancer Care Coordination Monitor (CCC-M). Emerging activities in cancer care are being targeted towards coordination. Due to the pervasiveness of coordination activities, having measures available that accurately and reliably capture the experience of coordination will be of great value in assessing the effect of these interventions.
To develop the Cancer Care Coordination Monitor (CCC-M), we proposed a mixed method study. First, semi-structured interviews with patients and providers will be done to review prior coordination items and generate new items based upon missing conceptual domains, as well as unique Veteran patient and VHA health care provider experiences. Second, we will field a finalized instrument to test its validity and psychometric properties
We have recruited and performed interviews among 16 cancer patients, including 4 colorectal cancer, 3 prostate cancer, 2 head and neck cancer, 5 lung cancer, and 2 breast cancer patients. The average age of the respondents is 69 years. Approximately 44% report a "comfortable" household income, and 12% are African-American. The majority of patients are retired.
Among Veterans with cancer, improved care coordination is an improvement of the patient experience. If we can increase our understanding of care coordination and how best measure it, we will have a new set of tools with which to monitor and meet the needs of the Veteran cancer population. Future system improvements can be evaluated based upon their consequences for care coordination.
None at this time.
Treatment - Observational, TRL - Development
Care Coordination, Efficiency